"Our lovely boy Zak was a force to be reckoned with. He was so different to his two much quieter, older brothers, Harry and Tom. Zak may have been the youngest of the family but he was certainly the loudest and brightest person in the room.
"Our darling Zak died on a Wednesday. Not long after he passed, the Demelza team arrived and took control and we felt an enormous sense of relief when they removed all of the medical paraphernalia from the living room. We needed to have Zak free from the equipment and medications that had consumed his short life for so long.
"Demelza has since offered bereavement support for our family, including a siblings group for Tom with other children who have lost a brother or sister.
"Zak made a huge impact on the lives of everyone who he met and we’re determined for his memory to live on."