"We were told about Demelza – and said this was a place that could give Mohammed Yahya the care he needed. We cannot describe the feeling of utter relief, the weight falling away from us."

"Zak went with his daddy to look around the Kent hospice and although he didn’t access much because of his prolonged hospital stays, Demelza ended up being there in our most critical time of need."

"We look forward to these sessions every week and they are a fun start to our weekends.

Being able to connect with other families taking part in music therapy has been a lifeline."

Chris was one of the volunteers who drove Zak and his daddy to and from every appointment. Caroline, Zak’s mummy said: "Demelza’s practical support volunteers drove him to every appointment. No longer did we have to worry about finding parking nearby, the money for petrol, or making poor Zak walk to the entrance in the pouring rain."

"Driving [Zak and his family] to and from appointments took the stress away from them, as driving to a hospital can be a stressful thing. I was always there on time and waiting for them when they came out. I never wanted them to have to worry about where I am."

"If you’re thinking of driving a family, my advice is that it can be quite upsetting and you need to be prepared for that. This is something that I am learning along the way, sometimes things hit me hard. Like Zak, I got to know him and his family really well..."