The launch of our new five year strategy 2022-27

We are excited to present Demelza’s new strategy.

This strategy will focus more than ever before on Demelza’s history of actively seeking the views and feedback from those who are the real experts; the children, young people and their families themselves.
We will strive to involve those who use or might need Demelza’s services in our decision-making and how we develop our services and ensure services are accessible to all those that need support, particularly those from diverse and minority backgrounds.

Please take a moment to watch our strategy video and find out more about our plans for the next five years.

A word from Demelza CEO, Lavinia Jarrett

Lavinia is wearing a smart summer blouse with a floral print.

The pandemic has been a time of extraordinary hardship for so many.

Many children with serious or terminal conditions and their families have been disproportionately negatively affected. As we start to
emerge, we will embrace the progress made in how we deliver services and will continue to seek out and embed how digital means can support Demelza to be effective and responsive to those who may need children’s palliative care services now and in the future.

We will collaborate across the health and social care sectors, with private, corporate, statutory and not-for-profit colleagues to provide seamless services to babies, children, young people and families. Working together will strengthen and sustain services that will
remain fit for purpose and best meet the aims and aspirations of those who will need them.

Of course, we cannot do any of this without the right people. Our staff, volunteers, donors, customers, partners and funders will all form an essential chain of expertise and support that we will nurture and develop to ensure we can meet all the objectives set out in this
ambitious strategy.

At Demelza, we provide expert clinical and emotional support to help families live the best life they can.

There are currently almost 90,000 children and young people in England who are living with a condition that means they are likely to die young. This number has tripled over the last 20 years and with advancements in research and medical interventions, this number will continue to rise (Fraser et al, 2020).

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Be effective

We will provide services that best meet the needs of babies, children, young people and their families. We will work to understand the area in which we work, those families who do and do not access our services and why, and explore every opportunity to ensure our services are accessible to all.

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Be responsive (do more)

We know that the prevalence of children living with a serious or terminal condition in the UK has almost tripled, reaching nearly 90,000 in just 18 years. This number is only set to grow - with expectations of it rising over the next decade and beyond.

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Extend our reach

Children in the UK with a serious or terminal condition is highest in the under-1s. An increasing number of young people are surviving to 19 (and beyond), an increase of over three-fold.

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"We are Demelza"

At Demelza, we understand we are our people. With the right people in our various stakeholder groups, we will enable our organisation to be well-led, in all respects. We will ensure we meet the ambitions and aspirations in supporting babies, children, young people, and their families.

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Strengthen and sustain

We will strive to reduce our carbon footprint, collaborate with others and embrace digital means to provide consistent, safe and equitable services. Services that are sustainable beyond the life of this strategy.

How will we achieve our strategic objectives and what will success look like?

Download and read our full strategy document to find out more about the steps we will be taking to achieve our five new strategic objectives and the measures we have put in place that will determine our success.