Anne says: I first started to work with Ravi when he was a young boy, a boy who persevered so hard to keep as mobile as possible. What I remember most, are the great times we had making memories, going to watch a movie and out for dinner, Ravi helping me with my mobile phone – all the things young people know about that us old ones don’t!
I have had an incredible journey working at Demelza and working with children and young adults with Duchenne. I have hopefully made a difference to these young people’s journeys - they have certainly enhanced my life.”
To find out more about the project Action Duchenne are working on with Demelza, and to take part in the survey that closes at the end of September, click the button below.