Earlier this month we shared with you the inspirational story of Wayne and Claire, parents to Jade. When Jade was just nine days old in January of this year, she came to Demelza’s Eltham hospice for end of life care. Today, Wayne and Claire are running the London Marathon in her memory and to continue raising vital funds for the organisations that were there throughout Jade’s journey.
“At just nine days old Jade had been transferred from hospital to Demelza for end of life care in the thick of a COVID-19 lockdown. The hospice and all of the Care team were amazing; they ensured that Jade could be with the people who loved her. I wish I could’ve held her. I wish I could’ve had longer. But I feel so incredibly grateful every day for the 10 minutes I had with her."
"When Jade died our world fell apart. I grieved for my loss but also for the pain that my daughter Claire and son-in-law Wayne were feeling. There was nothing I could do to alleviate it; I felt completely helpless."
"When the time came for us to meet Jade for the first time, my other son – Jade’s uncle Stephen - played ‘Somewhere Over the Rainbow’ on his ukulele. I held her hand and told her stories. Every year on her birthday I will write to her and when the time comes for us to meet in heaven, we can catch up on those stories.
"After Jade passed, Wayne and Claire always wanted one of us to always be with her; they couldn’t bear the thought of her being on her own. So, Jade’s nanny Cathy mainly and the rest of the family, took it in turns to spend time with her in the Butterfly Suite."
"When we were at Demelza, the nurses were always there in the background. Now and again they would appear with a coffee in hand and a smile on their face. They were amazing with Jade’s brother Elijah and would whisk him away to do fun activities. He never had to worry about a thing."