Ava-Lily was born with half a heart and had open-heart surgery when she was just three months old. She was also born with several vertebrae missing from her spine and needs a frame to help her walk.
“In a moment your whole world can be turned upside down. This is what happened when our two-year-old son Oakley was diagnosed with Angelman syndrome; a complex genetic disorder that primarily affects the nervous system. Demelza coming into our lives was like a big hug for our family." - Lisa, mum to Oakley
"Darcey’s smile and her character help us stay strong – as does the support from our friends and family. But, due to Darcey’s complex medical needs, there is so much they cannot help with. That’s why the support we’ve been receiving from Demelza has been vital." - Zoe, Darcey's mum.