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Latest from Demelza

News, blogs and family stories - discover what's been happening at Demelza.

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Blogs
Demelza stands by SMAUK and advocates for Spinal Muscular Atrophy to be added to newborn screening programme

Former Little Mix star Jesy Nelson has bravely shared that her seven-month-old twin girls have been diagnosed with Spinal Muscular Atrophy (SMA) Type 1 - a devastating diagnosis and stark reminder that a life-limiting condition doesn't just happen to other people.

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Kent Demelza Signage
Blogs
What is a trustee?

This Trustees’ Week, we’re celebrating the support, guidance and inspiration that trustees provide. There are nearly one million trustees across the UK, offering a wealth of knowledge and dedication to help charities thrive.

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Image of volunteer holding up a book in a charity shop
Blogs
Malcolm's volunteering story: from volunteer to a whole new career

Malcolm Vint is the assistant manager at Demelza’s bookshop in Hythe, but started out as a volunteer in one of Demelza’s charity shops. Despite retiring, Malcolm wasn’t ready to put his feet up and has now embarked on a whole new bookselling career.

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Photoshoot in the garden at Demelza Kent
Blogs
Julian's volunteering story

At Demelza, we have volunteering roles for everyone. We caught up with photographer Julian to hear more about how he lends his lens to Demelza’s mission. 

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Child for legacy campaign
Blogs
Leaving an extraordinary legacy: Ken's supporter story

Ken Green has been supporting Demelza for many years and decided to give a gift in his will to Demelza in memory of his own daughter, Susan, who sadly died at 66 years old. 

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Helen And Isaac Playing Wind Chimes
Blogs
Why you need a will – how to write one and leave a legacy

Having a will is so important – whatever your circumstances. Read more about why you should have one, how to write it and how leaving a legacy can support Demelza’s vital work past your lifetime.

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Child at SEL using screen
Blogs
More than words: Being nonspeaking nonverbal

This Nonspeaking/Nonverbal Awareness Day, find out what being nonspeaking/nonverbal means for the children we support.

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Dave Winch
Blogs
A legacy of extraordinary care: from nursing placement to deputy director

From a two-week student placement in 2004 to his pivotal role as Deputy Director of Nursing at Demelza, read about Dave Winch’s extraordinary nursing legacy and his unwavering dedication to children’s palliative care.

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A person wearing a grey shirt and a Demelza ID badge on a lanyard stands inside a wooden gazebo with lattice walls. Greenery and trees are visible in the background.
Blogs
Childhood Cancer Awareness Month: calming care for children with cancer

This Childhood Cancer Awareness Month, Demelza’s Nicola Fischer shares how gentle, personalised therapies help soothe and uplift children with cancer.

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