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Man with extremely rare disorder to take on Everest trek to support Demelza
A man told he wouldn’t live past the age of four due to an extremely rare genetic condition is taking on an Everest trek in aid of Demelza, who supported him as a child.
Mum supported by Demelza welcomes new drug trial which could change lives
A mum supported by Demelza whose son has a severe neurological condition which causes serious seizures has welcomed new drug trials which could change lives.
It can be hard work caring for a complex child 24/7, but Demelza is there for Tom’s whole family – from helping them connect with other families who understand, to making sure they can all be together for life’s precious moments, big or small.
Joshua died from an aggressive form of cancer just days before his 13th birthday. He came to Demelza’s bereavement suite, where his family could spend more precious time together and be with him on his last birthday.