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Latest from Demelza

News, blogs and family stories - discover what's been happening at Demelza.

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A woman with blonde hair wearing sunglasses with a young person in a chair wearing sunglasses outdoors
Blogs
Elle’s story: making the most of every moment

We caught up with Elle Lakin, a healthcare assistant at Demelza, to learn more about what it’s like to work at a children’s hospice and how she helps create special moments for families.

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A man in a white Demelza T-shirt in the seat of a white van looking out the window
Blogs
Mick’s volunteering story

Meet Mick, a volunteer driver at Demelza, and find out what it’s like to support families through volunteering.

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Blogs
Demelza stands by SMAUK and advocates for Spinal Muscular Atrophy to be added to newborn screening programme

Former Little Mix star Jesy Nelson has bravely shared that her seven-month-old twin girls have been diagnosed with Spinal Muscular Atrophy (SMA) Type 1 - a devastating diagnosis and stark reminder that a life-limiting condition doesn't just happen to other people.

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Blogs
What is a trustee?

This Trustees’ Week, we’re celebrating the support, guidance and inspiration that trustees provide. There are nearly one million trustees across the UK, offering a wealth of knowledge and dedication to help charities thrive.

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Image of volunteer holding up a book in a charity shop
Blogs
Malcolm's volunteering story: from volunteer to a whole new career

Malcolm Vint is the assistant manager at Demelza’s bookshop in Hythe, but started out as a volunteer in one of Demelza’s charity shops. Despite retiring, Malcolm wasn’t ready to put his feet up and has now embarked on a whole new bookselling career.

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Photoshoot in the garden at Demelza Kent
Blogs
Julian's volunteering story

At Demelza, we have volunteering roles for everyone. We caught up with photographer Julian to hear more about how he lends his lens to Demelza’s mission. 

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Child for legacy campaign
Blogs
Leaving an extraordinary legacy: Ken's supporter story

Ken Green has been supporting Demelza for many years and decided to give a gift in his will to Demelza in memory of his own daughter, Susan, who sadly died at 66 years old. 

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Helen And Isaac Playing Wind Chimes
Blogs
Why you need a will – how to write one and leave a legacy

Having a will is so important – whatever your circumstances. Read more about why you should have one, how to write it and how leaving a legacy can support Demelza’s vital work past your lifetime.

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Child at SEL using screen
Blogs
More than words: Being nonspeaking nonverbal

This Nonspeaking/Nonverbal Awareness Day, find out what being nonspeaking/nonverbal means for the children we support.

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