Demelza is here to help families feel equipped to cope at every stage of their child’s life, and beyond.
We understand the strain that caring for a child with a terminal condition can place on the whole family. Without support, many parents struggle to find any form of respite and some find it difficult to even leave the house. Under such pressure families can fall apart. Demelza is here to make sure every child and their family gets the best possible care.
Helping the whole family build precious memories
We look after mums, dad, brothers, sisters and grandparents, making sure they always have somewhere to turn when times are hard.
Choice and control over how your child is cared for
While some aspects of our care can be received in the child’s own home, families can also access wonderful facilities at our two hospices – Demelza Kent in Sittingbourne and Demelza SEL in Eltham. Our aim is to make life better for families by building up their strength and confidence to care for their child, while also supporting them through challenging times.
Care for the whole family
Taking care of a child with a terminal condition can be one of the most draining and difficult tasks a parent, grandparent or carer can face.
Beyond handling physical challenges and medical needs, they must deal with a child's emotional needs and the impact that a prolonged condition or illness can have on the entire family.
This tough balancing act doesn't have to be done alone - Demelza is here to support the whole family with:
Time to listen
We promise to make time to listen to your concerns and support you in finding ways forward.
Support groups and days out
To ensure our families spend quality time together and get mutual support from other, Demelza holds drop-ins, parties and days out for mums, dads, brothers, sisters and grandparents to enjoy. We also provide one-to-one support.
Advice and information
Details of services available in your local community and through Demelza.
Housing issues and advocacy
Support and advice with communication on your behalf with any difficult practical issues.
Holiday and short break applications
Access to charities offering specialist holidays for families with disabled children.
Liaison with professionals
Discussion with health, education and social care providers and professionals on key issues relating to your children or family.
Requests for funding for specific items of equipment that would benefit your child.
Information regarding applications for Disability Living Allowance (DLA), Carer’s Allowance and Funeral Payments.
If you would like help and advice on any of the above, please contact the Family Support team on 01795 845248