Man with extremely rare disorder to take on Everest trek to support Demelza
A man told he wouldn’t live past the age of four due to an extremely rare genetic condition is taking on an Everest trek in aid of Demelza, who supported him as a child.
Mum supported by Demelza welcomes new drug trial which could change lives
A mum supported by Demelza whose son has a severe neurological condition which causes serious seizures has welcomed new drug trials which could change lives.
