While Jemima was in intensive care after being born premature, music therapy became a light in her family’s darkest days.

“Fenton is 17, so at the moment he is still accessing all of Demelza’s services. I appreciate that numerically, maybe, Fenton is nearly an adult now, but actually nothing has changed. If anything, as he’s got older, his needs have got more profound."

“Ivy is 18 now, but she’s still a very complex little girl and requires 24/7 care. She has a condition called mitochondrial cytopathy, which has left her with complex needs, including profound multiple learning difficulties. Ivy is non-verbal and she is 100% reliant on a wheelchair, which supports her. She can generally express herself through excitement, or anger, or she can just laugh her head off, especially when she hears music!"

“Isla was a happy, bright, bubbly five-year-old and the first five years of her life were totally amazing. Sadly, this all changed overnight when she was diagnosed with an aggressive brain tumour. Within eight months of that diagnosis, Isla was gone.”

This National Heart Month, we hear from Harriet about her son Ethan, who has complex heart conditions and an undiagnosed syndrome, and how they are making the most of every day. 

This Childhood Cancer Awareness Month we are bringing you Zak's story and the amazing fundraising challenge his family have done to keep his memory alive.