Latest from Demelza

It can be hard work caring for a complex child 24/7, but Demelza is there for Tom’s whole family – from helping them connect with other families who understand, to making sure they can all be together for life’s precious moments, big or small.

Joshua’s zest for life was endless, and despite multiple rounds of cancer treatment, he was always ready with a smile and his trademark thumbs up.

Find out how Demelza has supported Scheherazade and her whole family, from big life events to little moments of joy.

Within a year, Jude went from being a happy, healthy and active nine-year-old to not being able to walk or talk and needing a ventilator to help him breathe.

While Jemima was in intensive care after being born premature, music therapy became a light in her family’s darkest days.

“Fenton is 17, so at the moment he is still accessing all of Demelza’s services. I appreciate that numerically, maybe, Fenton is nearly an adult now, but actually nothing has changed. If anything, as he’s got older, his needs have got more profound."

“Ivy is 18 now, but she’s still a very complex little girl and requires 24/7 care. She has a condition called mitochondrial cytopathy, which has left her with complex needs, including profound multiple learning difficulties. Ivy is non-verbal and she is 100% reliant on a wheelchair, which supports her. She can generally express herself through excitement, or anger, or she can just laugh her head off, especially when she hears music!"

“Isla was a happy, bright, bubbly five-year-old and the first five years of her life were totally amazing. Sadly, this all changed overnight when she was diagnosed with an aggressive brain tumour. Within eight months of that diagnosis, Isla was gone.”