The framework will set out the support available from both Nursing & Care and Family Support and aim to provide a robust, practical guide that defines the support available for Demelza families with a young person who is approaching the age of 18 and preparing to move to adulthood, eventually transitioning out of Demelza Hospice Care for Children.
We’re really proud to announce our plans to implement and develop our first Transition Framework at Demelza
Key Elements of the Framework
Transition isn’t a single event but a gradual process of supporting a young person and their family through their teenage years and into adulthood. We know that there are a range of challenges for families, particularly preparing to leave behind all the support and networks created through Demelza and other children’s services, when services and support post 18 is limited.
We have created a social care model and pathway of support up to the age of 25. Initially from the age of 16 and annually, we will offer advice, practical information and signposting on relevant issues. We will help parents and carers to have the right information at the right times, preparing for what happens next.
Over time, we will develop support for the young person themselves in accessing education, employment or volunteering opportunities, supported living, sexual health and we will continue to advocate for our parents, carers and young people.
We want to create more opportunities for peer support, such as the Transition Masterclass Workshop we delivered with Rett UK and Battens Disease Family Association and the Expert Parent Programme funded by TFSL. Providing more spaces for families to share ideas, stories, challenges and successes, to both help families with their journey but give us the opportunity to understand their needs and shape our offer.
All of our plans will be young person and family centred and we will be working closely with families to ensure the solutions we put in place meet their changing needs. We will work closely with adult hospices and the wider sector to overcome challenges relating to the complex care needs of young people and will advocate for change and improved support in the sector.
Transition Framework Question and Answer Sessions
Before a young person’s 18th birthday using the current booking process
As a children’s hospice and in line with our CQC (Care Quality Commission) registration, short breaks, day care and care facilities won’t be available after a young person turns 18. We recognise that services are then extremely limited for young adults. We are currently working with adult hospices across our geographical area and researching other organisations that could provide this support.
Up until the young person’s 25th birthday. Family support will offer signposting, advice or information around Transition related issues, as well as invitations to Transition events.
This can still be accessed up until young person’s 25th birthday.
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