You can find useful resources, links and downloads and the most recent updates from Demelza on this page.
Updates
Short breaks | Voices heard, changes made
In February 2023, the family engagement team organised a short breaks consultation session to get staff, partner organisations and families in the same room to chat about what works well, what could be better and anything else short breaks related. Since then we've made some changes...
Share our nursing appeal
We're looking for extraordinary nurses to find their extraordinary nursing career with Demelza! Can you help us to reach more people?
Please share news of our nursing vacancies with any friends and family who may be interested.
Respiratory illnesses update
At Demelza, we are aware that respiratory infections can be potentially dangerous, especially to those who have a severely low immune system or underlying respiratory conditions so here's an update on our infection prevention and control procedures for families and Demelza employees.
Resources
Together for short lives | www.togetherforshortlives.org.uk
Offer support and speak up for children living with a life-limiting or life-threatening condition, and those that support and care for them.
Affinity Hub | www.affinityhub.uk
Emotional support for parents of children with special needs.
Unique | rarechromo.org
Understanding rare chromosome and gene disorders.
Young Voices | Activities and resources
Activities and resources for children and young people to share their voice.
Turn2us Benefits Calculator | benefits-calculator.turn2us.org.uk/
Check what welfare benefits you are entitled to by using this benefits calculator.
StepChange | www.stepchange.org/
A charity offering free debt advice including help with a plan to deal with debt.
Together for Short Lives Energy Advice | www.togetherforshortlives.org.uk/get-support/supporting-you/energysupport/
Book an appointment with an Energy Adviser for support with using energy safely, efficiently and affordably.
Citizens Advice Debt and Money Advice | www.citizensadvice.org.uk/debt-and-money/
Free debt and money advice from Citizens Advice.
Mind | www.mind.org.uk/
This charity provide advice and support to empower anyone experiencing a mental health problem.
Calm | www.thecalmzone.net/
Calm is the Campaign Against Living Miserably (CALM). They stand against suicide and offer support and advice.
Mental Health Matters | www.mhm.org.uk/
Mental health support for individuals and communities.
Samaritans | www.samaritans.org/
Samaritans offer support dedicated to reducing feelings of isolation and disconnection that can lead to suicide.
Money Saving Expert | www.moneysavingexpert.com/
A site dedicated to help you cut your bills and save money.
Citizens Advice | www.citizensadvice.org.uk/
Information and advice for people with legal, debt, consumer, housing and other problems.
Better Heath - Child's mental health | www.nhs.uk/every-mind-matters/supporting-others/childrens-mental-health/
Ways to support a child or young person's mental health.
Family recipes | www.jamieoliver.com/family/ | www.aldi.co.uk/c/recipes/cardiff-mum
Budget-friendly recipes, inspiration and tips.
Breathing space meditation | Listen now
Join Liz for a calming guided meditation.
Winter by Susie Bridges | Download poem
A poem about winter by Susie Bridges to help you reflect and unwind.
Sibs | www.sibs.org.uk
For brothers and sisters of disabled children and adults
Carers Trust | carers.org
Support for young carers
Demelza | www.demelza.org.uk/about/equality-and-diversity
How to be a trans ally | NHS Developing people for health and healthcare
Black History Month | www.blackhistorymonth.org.uk/
British Dyslexia Association | www.bdadyslexia.org.uk/advice
Dyspraxia Foundation | dyspraxiafoundation.org.uk/
Disability Pride Month | www.inclusiveemployers.co.uk/awareness-day/disability-pride-month/
ADHD Awareness | www.adhdawarenessmonth.org/
January 2024
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May 2024
June 2024
The Family Update is sent every two weeks and includes updates, events and activities for children and young people. If you do not receive the newsletter and would like to sign up then please email careadministration@demelza.org.uk and we'll add you to our mailing list.
You can also check out resources from our Family Friday live sessions. These virtual sessions cover interesting topics such as mental health and wellbeing, advocacy, benefits and DLA and more. They are presented by members of the family support team and other team members who have a specialist interest.
Guide to services
Short breaks information
Family Support
Transition support
Practical support
Bereavement support
Cinema room FAQs
Hydro pool FAQs
Soft play FAQs
Demelza Dots play sessions
Moving and handling
Complementary therapy
Music therapy
Art therapy
Request this information in a different language
If you would like to request this information in a different language, please contact us so that we can support you.