Mia's Story

“It would have been chaos if we’d had to go home and we would have had to be in hospital a lot longer if Demelza wasn’t here.”
When Mia was born and suffered a bleed on the brain her parents Liz and Matt were told she may not survive the transfer to another hospital, let alone the surgery which would follow.

But she did, and after a traumatic few days in hospital the family was faced with the terrifying prospect of going home to learn how to care for their disabled daughter. Their other option was to turn to Demelza Hospice Care for Children. Although unsure at first, they decided to go straight to Demelza SEL in Eltham, where they stayed for eight days with their newborn.

“My parents were really worried about us being left  alone with a severely disabled child and having no support and no sleep – so it really was incredible that we could come here and get support," said Liz.

“It would have been chaos if we’d had to go home and we would have had to be in hospital a lot longer if Demelza wasn’t here.”

With so much experience of caring for children who need feeding tubes or suffer seizures the nursing team at Demelza was able to teach them so much about how to care for their daughter, Liz explained.

Mia, now one, has a brain injury and epilepsy and is likely to be diagnosed with cerebral palsy as she gets older, so the family will be relying on Demelza for the foreseeable future. But now Liz has the confidence to let Mia stay at the hospice and doesn’t worry about her while she’s away.

Their daughter is doing really well and everyone has been amazed by her progress. The family is marking each milestone as it comes. 

“Demelza feels like a second home. It’s such a fantastic place for Mia – we feel safe and know she’s being looked after.”

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