Curtis' Story

“Demelza provides us with the extra support we need as a family. I’m so glad it’s there.”

Twelve-year-old Curtis was born with a rare genetic condition for which there is no cure.

Curtis has Duchenne Muscular Dystrophy, which means he has progressive muscle degeneration and weakness. He has a short life expectancy, with medics predicting that he may live until he is 20  - which means his Mum, Dad and younger sister treasure not only every Christmas that they are able to spend with him, but every single day.

Curtis was not breathing when he was born and has global development delay, microcephaly and autism. He is not able to feed himself, dress himself, wash or clean his teeth. He needs a machine to help him cough.

Mum Jessica said she values the help Demelza gives the family, who live at Longfield, near Dartford, as looking after Curtis can be exhausting.

Jessica said: “When Curtis stays at Demelza it gives me a break and he loves it there. It means we can have time together as a couple and that we get to spend time with our daughter Olivia, who is eight.

“Olivia has gone along to the sibling support group which Demelza runs and it was lovely that she made a friend there.

“Demelza provides us with the extra support we need as a family. I’m so glad it’s there.”

At Demelza Curtis enjoys time in the hydrotherapy pool, enjoying splashing around with his mum, dad and sister Olivia, where the family make special memories.